UCSF Archives and Special Collections acquires and makes available the papers of Dr. Michael S. Gottlieb, pioneer HIV/AIDS researcher and clinician

Featured

By Erin Hurley, User Services & Accesioning Archivist

June 5, 1981 is widely known as the beginning of the AIDS epidemic in the United States because it was the day that the Center for Disease Control (CDC) published, in its Morbidity and Mortality Weekly Report (MMWR), the appearance of a cluster of diseases that would later come to be known as AIDS (Acquired Immune Difficiency Syndrome). The report, titled “Pneumocystis Pneumonia — Los Angeles,” was authored by five UCLA doctors: MS Gottlieb, MD, HM Schanker, MD, PT Fan, MD, A Saxon, MD, JD Weisman, DO, of the Division of Clinical Immunology-Allergy at the UCLA Medical Center. The article reports, “In the period October 1980-May 1981, 5 young men, all active homosexuals, were treated for biopsy-confirmed Pneumocystis carinii pneumonia at 3 different hospitals in Los Angeles, California.”[1] The primary author of this report, Doctor Michael S. Gottlieb – then 33 years old – made history as the person who discovered AIDS.  UCSF Archives & Special Collections is pleased to house Dr. Gottlieb’s archives, which are now processed and available for the first time. 

Photo of Dr. Michael Gottlieb by Elizabeth Nathane, originally published in the Los Angeles Blade

A record of his professional life and accomplishments, as well as the many honors and awards he received over the course of his career, the Michael S. Gottlieb papers contain published papers by Gottlieb and many others on AIDS-related topics. They also include information on various AIDS drug treatment studies (including AZT), professional and personal correspondence, and information about various talks and events attended by Gottlieb during the 1980s – a busy decade for him. They also document his prodigious philanthropic activities and AIDS advocacy.

Gottlieb figures prominently in this UCSF-generated timeline of the AIDS epidemic. The timeline, which begins with the 1981 MMWR report, notes that, in 1985, Rock Hudson – star of classic Hollywood films like Giant, All That Heaven Allows, and Written on the Wind – announced that he had AIDS and later died, becoming “the first major celebrity to succumb to the disease.”[1] Later that same year, the timeline reports, “The American Foundation for AIDS Research is founded with the help of movie star Elizabeth Taylor.” Gottlieb, who served as Rock Hudson’s physician from the time of his AIDS diagnosis to his death from the disease, was also one of the founding chairs of the American Foundation for AIDS Research, along with medical researcher Mathilde Krim and Taylor, who was a close friend of Hudson’s and his costar in Giant. The Foundation was established with a $250,000 gift from Hudson’s estate.  The Gottlieb papers also contain a fascinating trove of letters, which he dubbed “Crazy letters,” that he received after becoming publicly associated with Hudson in newspapers and the press. The letters indicate a fascination with the disease, which was still very new and widely misunderstood by the world at large.

If you’re interested in checking out the Michael S. Gottlieb papers, you can consult the finding aid or the library catalog record for the collection. The papers were a gift from Michael Gottlieb.


[1]Center for Disease Control. (1981, June 5). Pneumocystis Pneumonia — Los Angeles. https://www.cdc.gov/mmwr/preview/mmwrhtml/june_5.htm

[2] Cisneros, Lisa. (2021, June 4). 40 Years of AIDS: A Timeline of the Epidemic. UCSF News. https://www.ucsf.edu/news/2021/06/420686/40-years-aids-timeline-epidemic


UCSF Receives NNLM PSR Subaward: “The San Francisco Bay Area’s Response to the AIDS Epidemic: Digitizing and Providing Universal Access to Historical AIDS Records”

Featured

This Fall the UCSF Archives & Special Collections received a $138,370 subaward from the  Network of the National Library of Medicine, Pacific Southwest Region, for a project titled The San Francisco Bay Area’s Response to the AIDS Epidemic: Digitizing and Providing Universal Access to Historical AIDS Records.

Black-and-white poster of on African American man reaching for another; Brothers offers services for African American gay/bisexual men and transgender people. UCSF AIDS History Project Ephemera Collection, MSS 2000-31, box 7, folder 9, item 22.
Black-and-white poster of on African American man reaching for another; Brothers offers services for African American gay/bisexual men and transgender people. UCSF AIDS History Project Ephemera Collection, MSS 2000-31, box 7, folder 9, item 22.

UCSF’s project supports a priority area for NLM and NIH by digitizing approximately 45,000 pages from 15 archival collections related to the early days of the AIDS epidemic in the San Francisco Bay Area with the objective of making them widely accessible to the public. This project will chronicle the experience and struggles of communities of color and other marginalized communities during the onset of the AIDS epidemic.

This project will make publicly accessible experiences of communities that are “absent or excluded from the history of HIV/AIDS in the United States” [Jennifer Brier,  The Oral History Review, Volume 45, Issue 1]. Its goal is to include the voices of underrepresented and marginalized groups in the historical record and increase public impact of these archival collections. These collections cover diverse issues communities are faced with: poverty, racial and socio-economic segregation, health care policy inequalities, public health and sexual education and prevention, disparities in the HIV response, the impact of HIV on migrant communities, and the intersection of the criminal justice system and HIV.

It will build on the success and expand the UCSF’s AIDS history digital collection that was developed with the assistance from the Implementation Grant from the National Endowment for the Humanities in 2017-2019 and resulted in digitization of 160,197 pages from 35 archival collections from the three collaborating institutions: UCSF, San Francisco Public Library (SFPL), and Gay, Lesbian, Bisexual, Transgender Historical Society (GLBT HS).

Poster for AIDS Awareness week; San Francisco Community College district; San Francisco AIDS Foundation, 1986, artist: T.P. Ranger. UCSF AIDS History Project Ephemera Collection, MSS 2000-31, box 7, folder 9, item 23.
Poster for AIDS Awareness week; San Francisco Community College district; San Francisco AIDS Foundation, 1986, artist: T.P. Ranger. UCSF AIDS History Project Ephemera Collection, MSS 2000-31, box 7, folder 9, item 23.

The materials that will be digitized range from hand handwritten correspondence and notebooks to typed and printed reports and agency records. Photographic prints, negatives, transparencies, and posters will also be digitized. They will be added to a growing digital collection documenting the AIDS crisis established by UCSF on the California Digital Library platform, Calisphere and the Digital Public Library of America (DPLA) becoming publicly accessible around the world.  The materials will be digitized by the UC Merced Library’s Digital Assets Unit that has been partnering with UCSF on successful collaborative digitization projects for more than 10 years. All materials selected to be digitized will be carefully examined for privacy concerns and the archivists will consult with an existing Advisory Board.

UCSF plans to partner with NLM’s History of Medicine Division and DPLA to create a collaborative AIDS history primary source set on the Digital Public Library of America in order to disseminate the project results and enable their educational use. UCSF will also promote the availability of this resource to organizations in the San Jose, San Francisco, and Oakland, CA areas. This project is led by Polina Ilieva and Edith Escobedo serves as a project archivist.

“They Were Really Us”: The UCSF Community’s Early Response to AIDS — A New Exhibition on Calisphere

Featured

By Polina Ilieva, Head of Archives and Special Collections

When HIV/AIDS first seized the nation’s attention in the early 1980s, it was a disease with no name, known cause, treatment, or cure. Beginning as a medical mystery, it turned into one of the most divisive social and political issues of the 20th century. The University of California, San Francisco (UCSF) was at the forefront of medical institutions trying to understand the disease and effectively treat early AIDS patients.

Drawing on materials from the AIDS History Project collections preserved in UCSF’s Archives and Special Collections, the UCSF Library presents “They Were Really Us”: The UCSF Community’s Early Response to AIDS, a new digital exhibition on Calisphere that highlights the ways UCSF clinicians and staff addressed HIV/AIDS from its outbreak in the 1980s to the foundation of the AIDS Research Institute in 1996. 

From medical professionals defining the disease and developing a model of care, to activists calling for treatments and public education, this exhibition amplifies the resilience of a community not only responding to its local needs, but also breaking ground on a larger scale with efforts that continue to impact HIV/AIDS care and research today. 

The NAMES Project AIDS Memorial Quilt panels displayed at San Francisco City Hall during San Francisco Lesbian and Gay Freedom Day Parade, UCSF Library, Archives and Special Collections.

This exhibition, including the digitization of materials used in this exhibition, has been made possible in part by a grant from the National Endowment for the Humanities (PW-253755-17) “The San Francisco Bay Area’s Response to the AIDS Epidemic: Digitizing, Reuniting, and Providing Universal Access to Historical AIDS Records,” awarded to the UCSF Library in 2017-2020.

About UCSF Archives and Special Collections

UCSF Archives and Special Collections identifies, collects, preserves, and maintains rare and unique materials to support research and teaching of the health sciences and medical humanities and to preserve UCSF institutional memory. The Archives serve as the official repository for the preservation of selected records, print and born-digital materials, and realia generated by or about the UCSF, including all four schools, the Graduate Division, and the UCSF Medical Center.

The Special Collections encompasses a Rare Book Collection that includes incunabula, early printed works, and modern secondary works. The East Asian Collection is especially strong in works related to the history of Western medicine in Japan.The Japanese Woodblock Print Collection consists of 400 prints and 100 scrolls, dating from 16th to the 20th century. The Special Collections also contains papers of health care providers and researchers from San Francisco and California; historical records of UCSF hospitals; administrative records of regional health institutions; photographs and slides; motion picture films and videotapes; and oral histories focusing on development of biotechnology; the practice and science of medicine; healthcare delivery, economics, and administration; tobacco control; anesthesiology;  homeopathy and alternative medicine; obstetrics and gynecology; high altitude physiology; occupational medicine; HIV/AIDS and global health.

About Calisphere

Calisphere provides free access to California’s remarkable digital collections, which include unique and historically important artifacts from the University of California and other educational and cultural heritage institutions across the state. Calisphere provides digital access to over one million photographs, documents, letters, artwork, diaries, oral histories, films, advertisements, musical recordings, and more.
Calisphere Exhibitions are curated sets of items with scholarly interpretation that contribute to historical understanding. Exhibitions tell a story by adding context to selected digital primary sources in Calisphere, thereby bringing the digital content to life. Calisphere Exhibitions are curated by contributing institutions and undergo editorial review. We are currently refining these processes, which are outlined in the Contributor Help Center. Please contact us if you’re interested in learning more about Calisphere Exhibitions.

Save Our Stories: Support AIDS History Archive

Featured

https://givingtogether.ucsf.edu/fundraiser/2359886

Over the past three decades, UCSF Archives & Special Collections has played a vital role in documenting the AIDS epidemic.

We are seeking your help to maintain and grow the AIDS History Project (AHP) archive as a critical, one-of-a-kind public record of the institutions and individuals involved in containing and treating the HIV both locally, and worldwide.

Please help support the UCSF AIDS History Project. We are hoping you will donate today and help us raise $50,000 by 2/1/2020 – please take a moment to do it now.

Your generosity advances vital work to collect, preserve, and provide universal access to stories of the AIDS epidemic.

35 years have passed since the beginning of the AIDS epidemic, and many of the original researchers, health care providers, and community activists who were on the front lines of defense against HIV have now begun to retire from public service. There is an urgent need to collect, preserve, and provide open access to their collections.

Your support will allow us to:

  • Catalog and digitize recently acquired collections, including, papers of Drs. Jay Levy and Steven G. Deeks, SF AIDS Foundation records
  • Record a new set of oral histories with clinicians, researchers, pharmaceutical and biotech scientists, health care workers, activists, community members, patients, and their family members
  • Expand the AIDS History Project statewide scope, solicit and acquire material fro regional community health centers
  • Organize exhibits and public events to share materials and stories preserved in the archives

Read more and donate.

With gratitude,
UCSF Archives & Special Collections team

California Digital Library profiles AIDS History Project

Through its newsletter CDL “highlights new collections on Calisphere that feature community voices and stories. These collections are made available in close collaboration with local community members and broaden our worldview through the diverse narratives and myriad perspectives that resonate in the collections.

Spotlight on the AIDS History Project

The UCSF Archives & Special Collections was a pioneering repository that collected materials documenting the HIV/AIDS epidemic, one of the most significant public-health events of the late twentieth century and an ongoing challenge throughout the world. 

The AIDS History Project (AHP) began in 1987 as a joint effort of historians, archivists, AIDS activists, health care providers, and others to secure historically significant resources reflecting responses to the crisis in San Francisco. Starting in 1991, the Archives received several grants from the National Historical Publications and Records Commission (NHPRC) to fund the survey, acquisition, arrangement, and description of carefully selected records from numerous San Francisco-based agencies and organizations whose work focused on the AIDS crisis.” Continue reading: https://cdlib.org/cdlinfo/2019/10/30/diverse-narratives-and-myriad-perspectives-new-collections-on-calisphere/

They Were Really Us, AIDS History Exhibit, Opens on October 1

Featured

This is a guest post by exhibit curator Sabrina Oliveros 

When HIV/AIDS first seized the nation’s attention in the early 1980s, it was a disease with no name, known cause, treatment, or cure. Beginning as a medical mystery, it turned into one of the most divisive social and political issues of the 20th century.

On October 1, 2019, UCSF Archives & Special Collections is opening the exhibit They Were Really Us: The UCSF Community’s Early Response to AIDS. Featuring materials from the Archives’ extensive AIDS History Project Collections, the show highlights ways individual professionals affiliated with UCSF acted to address HIV/AIDS following its outbreak. Their responses included working in and with the larger San Francisco community – and continue to impact HIV/AIDS care and research today.

The exhibit title comes from a statement by Dr. Paul Volberding, who co-founded the country’s first dedicated AIDS Clinic in 1983; he now serves as the Director of UCSF’s AIDS Research Institute:

“The patients were exactly our age… all those other ways that we tend to separate ourselves meant very little when you realize that the patients had gone to the same schools, they listened to the same music, they went to the same restaurants. So they were really us… which added to the commitment that I think all of us had.”

Early milestones

The first proofs of that commitment are traced through displays on the main lobby (third floor) of the UCSF Library.

Here, papers, slides, photographs, and artifacts help outline early milestones in HIV/AIDS research and care. These include the foundation of the Kaposi’s Sarcoma Clinic at UCSF, which sought to understand the mysterious “cancer” that turned out to be AIDS; the discovery of the HIV virus in 1983 by Dr. Jay Levy; the establishment of the outpatient and inpatient AIDS clinics at San Francisco General Hospital; and the development of the holistic San Francisco Model of AIDS Care.

Pioneering and compassionate, this model treated people with AIDS not simply as patients requiring medical attention, but as complex individuals also in need of psychological, social, economic, and political support.

Excerpts from the diary of Bobbi Campbell – a UCSF nursing student who championed the People With AIDS Self-Empowerment Movement – help tell some of these individual stories. So do a selection of newsletters and other materials that lend voices to persons with AIDS.

A loaned section of the AIDS Memorial Quilt caps off the displays.

Community voices

The outbreak of HIV/AIDS devastated the city of San Francisco; it also mobilized the community. Exhibits on the first floor of the library showcase the work done by community organizations that, beyond the medical front, fought HIV/AIDS.

Reproductions of posters – mostly from UCSF’s longest-running partners, the San Francisco AIDS Foundation and the Shanti Project – represent outreach and educational campaigns necessary to combat the disease. Materials from Mobilization Against AIDS and the AIDS Coalition to Unleash Power (ACT-UP) speak to the political battle that AIDS became.

How much of an impact did these advocacy groups make? A selection of letters, written to the leaders of Mobilization Against AIDS and AIDS Treatment News, offer an idea.  

Continuing care

On the fifth floor of the library, displays touch on two more milestones following the 1980s.

The first, UCSF’s sponsoring of the 6th International Conference on AIDS, is one of the many examples of how physicians and researchers have expanded their work on a global scale. Revisiting this 1990 conference is timely, as the 23rd International Conference on AIDS will take place in Oakland and San Francisco in July next year – the first time the conference will be in the Bay Area in nearly three decades.

The second milestone, the founding of the AIDS Research Institute in 1996, puts a focus on the UCSF’s continuing efforts to find a cure, and end HIV/AIDS once and for all.

They Were Really Us will be on view until September 2020: https://www.library.ucsf.edu/archives/lectures-exhibits/

New to the Archive: The William R. Alschuler collection

We are excited to announce the addition of a newly acquired collection to the archive. This collection includes materials assembled and organized by William R. Alschuler, California Institute of the Arts science faculty, for a class on the AIDS epidemic he was teaching in 1993-1996 entitled, “AIDS as exhibit.” It contains flyers, handouts, newsletters, and other publications from numerous public health departments and community based organizations in California and around the country with information about AIDS transmission and prevention, treatment, testing protocols, nutrition, service organizations, legal rights and educational resources as well as newspaper and journal clippings and course syllabi about the history of the AIDS epidemic. The final project of this class included exhibits curated by students that were displayed in hallways at California Institute of the Arts.

Processing the Laurie Garrett papers

As part of our current National Archive NHPRC grant project “Evolution of San Francisco’s Response to a Public Health Crisis: Providing Access to New AIDS History Collections,” we’ve been processing the papers of Laurie Garrett. Garrett is a Peabody, Polk, and Pulitzer Prize award winning journalist. She won the Pulitzer Prize for Explanatory Journalism for her work chronicling the Ebola virus in Zaire published in Newsday. She is also a bestselling author of the book The Coming Plague: Newly Emerging Diseases in a World Out of Balance. Garrett has worked for National Public Radio, Newsday, and was a senior fellow for The Council of Foreign Relations. She has won many awards including the Award of Excellence from the National Association of Black Journalists and the Bob Considine Award of the Overseas Press Club of America.

Headshot of Laurie Garrett
Laurie Garrett, photograph by Erica Berger, MSS 2013-03

The Laurie Garrett papers include drafts of her two books, The Coming Plague and Betrayal of Trust. The collection also includes material related to her service in The Council on Foreign Relations. Garrett’s papers feature correspondence, records of the various national and international conferences and meetings of which she was a part. Some unique types of material present in the collection include audiovisual recordings, photographs, videotapes, film reels, notebooks, and interviews.

A conference bag with several flyers for HIV/AIDS conferences laying on a table.
Conference bags, notebook, and press card, Laurie Garrett papers, MSS 2013-03

Once the Laurie Garrett papers are processed, a finding aid will be prepared and put on the Online Archive of California, and a small selection of the collection will be digitized and made available online to researchers via Calisphere.

-Edith Martinez, processing archivist for AIDS History Project

Surviving and Thriving: A new exhibit at ZSFG

By Griffin Burgess

Announcing a new exhibit at ZSFG!

From January 28th to March 9th, the National Libraries of Medicine’s traveling exhibit, Surviving and Thriving: AIDS, Politics, and Culture will be on display in the lobby of the main hospital (Building 25) at Zuckerberg San Francisco General Hospital.

The exhibit is only available for six weeks, so be sure to visit as soon as you can!

From NLM:

The exhibition explores the rise of AIDS in the early 1980’s and the evolving response to the epidemic over the last 30 years.

The title Surviving and Thriving comes from a book written in 1987 by and for people with AIDS that insisted people could live with AIDS, not just die from it. Jennifer Brier, the exhibition curator, explains that “centering the experience of people with AIDS in the exhibition allows us to see how critical they were, and continue to be, in the political and medical fight against HIV/AIDS.”

 Protestors in front of the James A. Shannon Building, National  Institutes of Health, 1990  Courtesy Donna Binder
Protestors in front of the James A. Shannon Building, National Institutes of Health, 1990 Courtesy Donna Binder

Surviving and Thriving presents their stories alongside those of others involved in the national AIDS crisis. The six-banner traveling exhibition utilizes a variety of historic photographs as well as images of pamphlets and publications to illustrate how a group of people responded to, or failed to respond, to HIV/AIDS.

Robert C. Gallo, M.D. at the National Institutes of Health, early 1980’s . Courtesy National Cancer Institute, National Institutes of Health
Robert C. Gallo, M.D. at the National Institutes of Health, early 1980’s. Courtesy National Cancer Institute, National Institutes of Health

This exhibition was produced by the National Library of Medicine, National Institutes of Health and curated by Jennifer Brier, PhD, University of Illinois.


UC 150th Anniversary Highlight: Jay Levy

This is a guest post by Edith Martinez, UCSF Archives Volunteer.

The University of California is celebrating its 150th anniversary this year. Over the 150 years, the UC campuses have accomplished great things that have changed California and the world for the better. To commemorate the anniversary, a 150 year timeline has been created that features the history and accomplishments of the UC and its students, faculty, and staff.

One of the accomplishments that stood out to me was that of UCSF’s Jay Levy. Jay Levy, virologist and immunologist, became the third independent discoverer of the Human Immunodeficiency Virus (HIV), the virus that causes AIDS. Levy received a request for advice about a patient with rare skin cancer lesions which led him to research the virus. His work led to better treatments for the disease and he has dedicated his career to further understanding HIV/AIDS.

Jay Levy

UCSF remains at the center of HIV/AIDS research and patient care. As a volunteer with the UCSF Archives, I am working on the NHPRC-funded grant, Evolution of San Francisco’s Response to a Public Health Crisis: Providing Access to New AIDS History Collections, an expansion of the AIDS History Project. I have learned the important role that UCSF has played in research and treatment and will continue to play in finding the cure for AIDS.