We are at the one-year point of the project Pioneering Child Studies: Digitizing and Providing Access to Collection of Women Physicians who Spearheaded Behavioral and Developmental Pediatrics. UCSF Archives & Special Collections and UC Merced have made significant headway towards our goal of digitizing and publishing 68,000 pages from the collections of Drs. Hulda Evelyn Thelander, Helen Fahl Gofman, Selma Fraiberg, Leona Mayer Bayer, and Ms. Carol Hardgrove.
To date we have digitized over 33,000 pages. The digitized material are still undergoing quality assurance (QA) procedures. Here are some items we have digitized so far.
Dr. Leona Mayer Bayer
This collection features professional correspondence of Dr. Leona Mayer Bayer. Her work focused on child development and human growth and psychology of sick children.
Dr. Selma Horwitz Fraiberg
This collection includes several drafts of her research papers on important aspects of developmental-behavioral pediatrics.
In the next year we will continue digitizing and will soon publish our collections on Calisphere. Stay tuned for our next update.
UCSF Archives & Special Collections (A&SC) is excited to announce that it was awarded a grant by the National Historical Publications and Records Commission (NHPRC) in support of the project titled Pioneering Child Studies: Digitizing and Providing Access to Collection of Women Physicians who Spearheaded Behavioral and Developmental Pediatrics.
The $149,814 award will support the creation of a digital collection on Calisphere containing materials from five collections held at UCSF documenting life and work of five women physicians and social workers, Drs. Hulda Evelyn Thelander, Helen Fahl Gofman, Selma Fraiberg, Leona Mayer Bayer, and Ms. Carol Hardgrove, who were pioneers in the developmental-behavioral pediatrics research, patient care, and public-health policy. These materials will enable researchers and general public to understand evolution of social policy and cultural norms as they relate to special education, people with disabilities, and equitable access to health care.
In her support letter for this project Dr. Alicia F. Lieberman, the Irving B. Harris Endowed Chair in Infant Mental Health and Vice Chair for Academic Affairs at the UCSF Department of Psychiatry, and Director of the Child Trauma Research Program stressed thatthis grant is extraordinarily timely because these women physicians and social workers “have been trailblazers in creating new knowledge and revolutionizing clinical care, but their contributions are at risk of being neglected or overlooked. These five women excelled against enormous odds in fields where women had difficulty establishing their own independent contributions, and the long-term ramifications of their work continue to benefit millions of children worldwide.”
A relatively new field in medicine, developmental-behavioral pediatrics came out of an increased demand for mental health services in pediatric care starting in the 1920s. While infant and child mortality rates declined in part due to public health campaigns and medical breakthroughs, concerns over behavioral problems and developmental delays grew as pediatrics began to look beyond mere survival and started to consider the whole child.
“These five women,” saysDr.Jeffrey L. Edleson, Professor and Harry & Riva Specht Chair Emeritus in Publicly Supported Social Services in the School of Social Welfare at the UC Berkeley, “studied and practiced in the same time period and were instrumental in establishing and developing training programs for pediatricians, nurses, and social workers. All of them also published works for the general public addressing issues that emerged at that time and continue to be discussed today, including the role of the mother in the early life of the child, emotional life of children and the importance of including the whole family in pediatric patient care.
A digital collection unifying the records of these five remarkable women scholars […] will benefit historians of medicine and public health, sociologists, educators, social workers, policymakers, health care providers, patient advocates, and parents.”
Documents from these five collections often illustrate the work of their creators on the same or similar projects and collaboration between the creators; these will be digitally “reunited” in the course of the grant by being posted on the same digital platform, Calisphere and being linked through extended metadata. They speak to the contribution women made early on in developmental-behavioral pediatric clinical research through the papers of Dr. Thelander. In 1952, she founded the Child Development Center at the Children’s Hospital of San Francisco where she conducted studies on children with brain-damage and general pediatric neurology. These women were influential in the training of pediatricians as documented by the records of Dr. Gofman. Since 1966 she served as a director of the Child Study Unit at UCSF, one of the first training programs in behavioral pediatrics in the US. The papers of Dr. Fraiberg document several important aspects of developmental-behavioral pediatrics, including the influence of psychoanalysis on the field and her groundbreaking work on intergenerational transmission of trauma. These women were also instrumental in the evolution of pediatric nursing. Ms. Carol Hardgrove collection documents her role as an educator with the School of Nursing and Child Care/Study Center who authored many works dealing with children and parents and the hospital experience. The collection also features professional correspondence of Dr. Leona Mayer Bayer whose life’s work was focused on child development and in particular human growth and psychology of sick children.
According to Dr. Andrew J. Hogan, Associate Professor and Director of the Science and Medicine in Society Program at Creighton University, “Filling in these silences and gaps in the historical records, by making available more widely their various ideas, aspirations, and institutional negotiations, will allow this story to be told in much fuller detail. Gofman, Thelander, and others’ stories are likely to inspire another generation of groundbreaking young physicians to organize care for populations in need. It will be valuable for students and researchers to learn more about the many challenges that these women physicians faced, and how they overcame them to provide improved resources and support for children with behavioral and developmental conditions and disabilities, a population that was historically overlooked in pediatrics, especially in the mid-20th century, when these women were professionally active.”
As part of this project UCSF archivists will engage with communities of women physicians, researchers, and health care providers, discussing how to document their voices that have been underrepresented, absent, or excluded from the history in general and history of their institutions (including UCSF) or professions in particular. By collecting their stories and learning how to document and share them, we will create a more inclusive and equitable historical record.
This 24-month project was launched in September and will be managed by our processing archivist, Edith Escobedo. The materials will be digitized by the UC Merced Library’s Digital Assets Unit that has been partnering with UCSF on successful collaborative digitization projects for more than 10 years.
The mission of the UCSF Archives and Special Collections is to identify, collect, organize, interpret, and maintain rare and unique material to support research and teaching of the health sciences and medical humanities and to preserve institutional memory. Please contact Polina Ilieva, Associate University Librarian for Collections with questions about this award.
John S. Greenspan and Deborah Greenspan. Photograph by David Powers. AR 2015-31, carton 2.
Included in the Greenspan papers are files related to the Women’s Interagency HIV Study (WIHS). WIHS was organized in 1993 to investigate the impact of HIV infection on women. It is one of the largest and longest ongoing U.S. studies of its kind, with clinical sites and cohorts throughout the country. John Greenspan and Deborah Greenspan, his wife and longtime research partner, participated in research activities associated with WIHS.
In the collection are copies of WIHS newsletters created for and by women living with HIV. The newsletters include updates on WIHS research, stories and letters from participating women, event announcements, and other related information. Below are sample pages from the Spring 1997 issue of Health WIHS, a publication of the Women’s lnteragency HIV Study in Chicago.
John S. Greenspan and Deborah Greenspan. Photograph by David Powers. AR 2015-31, carton 2.
Greenspan’s work has played a major role in HIV research and care. He and his longtime collaborator and wife Deborah Greenspan, BDS, DSc, discovered the lesion hairy leukoplakia and determined the significance of this and other oral lesions in HIV/AIDS. He has published and lectured widely on the oral aspects of AIDS, oral pathology, and immunopathology.
Photographs of the Second International Workshop on the Oral Manifestations of HIV Infection, 1993. Greenspan papers, MSS 2016-14.
Greenspan’s research interests include the global health aspects of AIDS and his professional service reflects this. He has served as President of the American Association for Dental Research (AADR) and the International Association for Dental Research (IADR). He is the founding President of the IADR Global Oral Health Inequalities Research Network (IADR-GOHIRN) and of the Consortium of Universities for Global Health’s Global Oral Health Interest Group (GOHIG).
Greenspan’s papers include records of his research and work developing the Oral AIDS Center and the AIDS Specimen Bank. They also include material related to his teaching and service in professional organizations, including AADR and IADR. Greenspan’s papers feature correspondence with members of his global network of researchers and healthcare providers and records of the various national and international conferences and meetings of which he was a part. The collection includes some unique types of material, including audiovisual recordings, glass microscope slides, health science instruments, and conference posters and photographs of events.
At the conclusion of the Greenspan processing project, a detailed finding aid will be available to researchers online and a small portion of the collection will be digitized and made available on Calisphere.
This is a guest post by Edith Martinez, UCSF Archives Volunteer.
The University of California is celebrating its 150th anniversary this year. Over the 150 years, the UC campuses have accomplished great things that have changed California and the world for the better. To commemorate the anniversary, a 150 year timeline has been created that features the history and accomplishments of the UC and its students, faculty, and staff.
One of the accomplishments that stood out to me was that of UCSF’s Jay Levy. Jay Levy, virologist and immunologist, became the third independent discoverer of the Human Immunodeficiency Virus (HIV), the virus that causes AIDS. Levy received a request for advice about a patient with rare skin cancer lesions which led him to research the virus. His work led to better treatments for the disease and he has dedicated his career to further understanding HIV/AIDS.
The collection includes a sampling of the ATN records that we house at UCSF. ATN is a publication created by John S. James that investigates and reports on both conventional and experimental treatments for HIV/AIDS and related social and political issues. It began publication in 1986.
Notable material includes images of the 1988 protest at the Federal Drug Administration (FDA) offices in Washington, DC, flyers related to the NAMES Project AIDS Memorial Quilt, and ACT UP San Francisco material.
AIDS National Conference booklet, 1987. ATN records, MSS 94-28.
I have specifically been working on material from AIDS Treatment News, a biweekly newsletter started by John James in 1986 that reports on experimental and conventional treatments for HIV/AIDS and related conditions. ATN articles are based on information that James gathered from meetings, conferences, interviews, publications, and correspondence.
VIIIth International Conference on AIDS in Africa and VIIIth African Conference on Sexually Transmitted Diseases, 1993. ATN records, MSS 94-28.
Working on this collection I realized that it is a lot of work organizing and processing. I’ve also learned more about the history of AIDS and found some really interesting items that I thought were fascinating. John James attended many conferences and saved many of the booklets from these conferences. The booklets for the VIIIth International Conference on AIDS in Africa and the AIDS National Conference in San Francisco are just some examples. Looking through these booklets and reading about the talks and workshops listed in each, one can see how AIDS prevention and treatment has progressed and changed over the years. It’s a true learning experience, and working on this collection has really helped me better understand AIDS history and archival work.
Francis grew up in the San Francisco Bay Area and attended the University of California, Berkeley. He received his MD from Northwestern University, his Doctor of Science from Harvard University, and completed training in pediatrics. In 1971 he joined the CDC, where he continued to work for the next 21 years. At the CDC, he worked on a number of projects in coordination with the World Health Organization (WHO), including the Smallpox Eradication Program in Sudan and India. He was also part of the WHO team that investigated the first Ebola outbreak in 1976.
Francis began investigating HIV/AIDS after its emergence in 1981. He directed the AIDS laboratory at the CDC and worked closely with the Institut Pasteur to identify the causative virus. He called attention to the threat of AIDS among gay and straight people and warned of the inadequacy of the public health response and lack of funding. As he stated in a 1983 letter to CDC Center for Infectious Diseases Director Walter R. Dowdle, “Our past and present efforts have been and are far too small and we can’t be proud. It is time to do more. It is time to do what is right.”
In 1992, Francis joined Genentech and helped found what became the International AIDS Vaccine Initiative (IAVI). Francis later co-founded VaxGen, which completed the world’s first Phase III trials of two candidate HIV vaccines in 2003. In 2004, Francis co-founded Global Solutions for Infectious Diseases (GSID) and he continues to consult regarding vaccines and public health.
We’re happy to announce the new AIDS Health Project (AHP) digital collection. The UCSF AIDS Health Project (AHP) began its HIV/AIDS education, prevention, and counseling efforts in 1984 with support from the San Francisco Department of Public Health (SFDPH). It grew out of a community commitment to respond and treat itself.
AHP staff and volunteers conducted research and provided mental health counseling, crisis intervention, HIV testing, youth outreach, and social services. Additionally, AHP provided HIV/AIDS training to mental health and other healthcare providers.
AHP implemented innovative programs and developed literature aimed at youth, gay men, minority communities, and other groups. AHP changed its name from the AIDS Health Project to the Alliance Health Project in 2013, expanding its mission to explicitly include the health and wellness of LGBTQ people. Check out their current work at ucsf-ahp.org.
For our first installment, we’re highlighting the new digital collection of Selma Dritz. Selma K. Dritz, MD, MPH, served as Assistant Director of the Bureau of Communicable Disease Control and Chief of the Division of Occupational Health of the San Francisco Department of Public Health (SFDPH) from 1967-1984. She played a seminal role in the early years of the HIV/AIDS epidemic in the San Francisco Bay Area, tracking cases and collaborating with the Centers for Disease Control and Prevention and UCSF to help establish the etiology and epidemiology of the disease. She worked to educate gay and straight people about AIDS and its prevention.
The Dritz papers in part document the relationships Dritz cultivated with other physicians, researchers, and community advocates. For instance, during her tenure at SFDPH, Dritz developed a close working relationship with Randy Shilts, author of And the Band Played On, a groundbreaking work that chronicled the early years of the AIDS epidemic. The digital collection includes thank you cards Shilts wrote to Dritz and the program for Shilts’s memorial service and Dritz’s handwritten notes she prepared for it following his death in 1994.
To view the Dritz digital collection, visit Calisphere.org. There you can also view other digitized material from collections in the AIDS History Project, including the San Francisco AIDS Foundation records and AIDS Ephemera collection.